An Educational Symposium Monschke Hall at Twin Lakes Church

Held on
Saturday, March 2, 2019 2701 Cabrillo College Drive
8:00 AM – 3:00 PM Aptos, CA 95003

My Life is Bigger than Parkinson’s

With Major Funding From
The Bowen Family Foundation

Presented By the
Santa Cruz County Parkinson'S Group
a program of EASE PD, inc 

Speakers (and presentation slides)

Peter Lin, MD, Parkinson's and Movement Disorders Specialist, Valley Parkinson Clinic, Los Gatos, CA (Slides)

Laurie Mischley, ND, PhD, Seattle Integrative Medicine, Seattle WA (Slides)

Karen Nauenberg, MPT, Dominican Hospital, Santa Cruz (Slides)

Amy Carlson, PwP and Davis Phinney Foundation Ambassador, Monrovia, CA (Slides)

David Zimmerman, LMFT, Private Practice, Soquel (Slides)

Peter Lin, MD   Parkinson's Disease & Movement Disorder Specialist  Valley Parkinson Clinic, Los Gatos, CA

Peter Lin, MD

Parkinson's Disease & Movement Disorder Specialist

Valley Parkinson Clinic, Los Gatos, CA

Emerging Technologies in the Management of Parkinson's Disease

Peter Lin, MD

Highlighting new wearable devices for the monitoring and treatment of Parkinson's disease

Peter Lin, MD is a Movement Disorder Specialist at the Valley Parkinson Clinic based in Los Gatos, California. He has experience taking care of patients with Parkinson's disease for the last 13 years including expertise in botulinum toxin therapy and deep brain stimulation. He performed his undergraduate studies at Stanford University and medical school training at University of Michigan Medical School. He then completed residency in internal medicine and neurology at Stanford Hospitals and Clinics, followed by movement disorders fellowship training at the National Institutes of Neurological Disorders and Stroke in Bethesda, Maryland.

Dr. Lin’s research interests include movement analysis as well as emerging technologies for the treatment of movement disorders. His approach to clinical care is to provide a personalized yet comprehensive plan utilizing traditional, alternative and technology-based therapies.

Dr. Laurie Mischley   ND, MPH, PhD  Seattle Integrative Medicine, Seattle WA  Bastyr University Research Institute, Kenmore, WA

Dr. Laurie Mischley ND, MPH, PhD Seattle Integrative Medicine, Seattle WA

Bastyr University Research Institute, Kenmore, WA

Putting Parkinson’s Into Perspective: A Metabolic Disease with Neurological Consequences?

Dr. Laurie Mischley ND, MPH, PhD

Dr. Laurie Mischley ND, MPH, PhD studied naturopathic medicine (ND) at Bastyr University, then epidemiology (MPH) and nutritional sciences (PhD) at the University of Washington. Her work is focused on identifying the nutritional requirements unique to individuals with neurodegenerative diseases. She has published on coenzyme Q10, lithium, and glutathione deficiency in Parkinson’s Disease (PD).

As a clinical researcher, she has worked with the FDA, NIH, and the Michael J. Fox Foundation to administer intranasal glutathione, (in)GSH, to individuals with PD. She is Principal Investigator on the CAM Care in PD study, designed to determine whether our choices affect PD symptoms and progression. 

She is founder of the Social Purpose Corporation, NeurRx, where she trains dogs to identify the scent of Parkinsonism. She’s developing a screening tool to go along with the early intervention strategies. 

Dr. Mischley is author of the book Natural Therapies for Parkinson’s Disease. She has served on the Bastyr University Institutional Review Board since 2010 and regularly provides mentorship to students interested in integrative medicine research.  Dr. Mischley maintains a small clinical practice at Seattle Integrative Medicine focused on nutrition and neurological health.

Karen Nauenberg, MPT   Physical Therapist Dominican Hospital, Santa Cruz

Karen Nauenberg, MPT

Physical Therapist
Dominican Hospital, Santa Cruz

Exercise for Life to Improve FUNction and Mobility in People with Parkinson’s

Karen Nauenberg, MPT

Well known to the local PWP community, Karen Nauenberg has been a Physical Therapist at Dominican Hospital since 2007. In February 2018, Karen became Certified as a PWR Moves Therapist and has since been incorporating the PWR Moves into her Parkinson’s specific PEP classes.

Karen Nauenberg received her undergraduate degree in Biology at University of California, Santa Cruz (UCSC) and then received her Master’s in Physical Therapy from California State Long Beach (CSULB). Karen has worked in the Neurological Outpatient Department for the past 10 years, providing services to people with PD, Traumatic Brain Injuries, Spinal Cord injuries, Multiple Sclerosis, and many other neurological disorders. Karen also works in the Wheelchair Mobility Clinic, provides aquatic therapy, and inpatient care. She has been teaching Dominican’s PEP (personal enrichment program) class for the community for the past 11 years. She is currently the instructor for all the Parkinson’s specific PEP classes, the balance class, the Strength building for people with neurological impairment, and Employee classes.

Amy Carlson   Ambassador for the Davis Phinney Foundation

Amy Carlson
Ambassador for the Davis Phinney Foundation

How I Created a Bigger Life

Amy Carlson

Amy is an ambassador for the Davis Phinney Foundation sharing resources and information throughout her local and regional communities to help people take action and improve their quality of life with Parkinson’s.

As a fierce advocate for People with Parkinson's (PWP) Amy reads extensively about the history of the condition and keeps current on the latest research. She leads exercise opportunities for those living with neurological conditions and believes in the power of personal advocacy, integrative medicine, advanced care directives, palliative care and hospice. Amy recently participated in the Parkinson's Policy Forum in Washington DC, lobbying members of Congress to fund the recently passed bipartisan 21st century cures act.

Amy Carlson knows that exercise is the cornerstone to living well with Parkinson's Disease and other neurological conditions. Diagnosed with Parkinson's Disease in 2012 at age 44, she has spent the last 6 years learning as much as possible about the disease and how to manage it. She has attended the PWR! retreat in AZ to train with Dr. Becky Farley, has trained with Gary Sobol of the Parkinson's Network in Colorado, and with David Levinthal from the Mark Morris Dance company.

David Zimmerman   LMFT, Private Practice, Soquel, CA

David Zimmerman

LMFT, Private Practice, Soquel, CA

Staying Motivated and Finding Inspiration In Hard Times

David Zimmerman, LMFT

David Zimmerman is a licensed psychotherapist with more than 30 years of clinical experience.  He sees individuals, couples and families at his counseling practice in Soquel, CA. David tailors his therapeutic approach to fit each client in a practical, accessible fashion. He has extensive experience in marital conflict, substance abuse, families with teens, anxiety and mood management.  Currently he is interested in collaboratively supporting families who are taking care of an elderly loved one.


Program Schedule

7:30 – 8:00 Exhibitor Check-In

8:00 – 9:00 General Check-In

8:40 – 9:00 Tremolos Singing Group Performance

9:00 – 9:15 Welcome

9:15 – 10:00 Dr Peter Lin, MD
Emerging Technologies in the Management of Parkinson's Disease
Dr. Lin will present the latest thinking in medications, procedures, and technologies, highlighting new wearable devices for the monitoring and treatment of Parkinson's disease.

10:00 – 10:15 Break

10:15 – 10:30 Karen Nauenberg, MPT
Exercise for Life to Improve FUNction and Mobility in People with Parkinson’s (Part 1)
Karen will speak to the importance and many benefits of exercise for PWPs, and will lead the audience in a series of seated exercises.

10:30 – 11:15 Laurie Mischley, ND, PhD
Putting Parkinson’s Into Perspective: A Metabolic Disease with Neurological Consequences?
Dr. Mischley will cover when and why Parkinsonism starts, and what you can do to impact its course, describing the nutritional, pharmaceutical, social, and physical activity-related behaviors associated with the slowest rate of PD progression.

11:15 – 11:45 On-stage discussion and audience Q&A with Dr. Lin and Dr. Mischley

11:45 – 12:15 Lunch and Conversation at Affinity Tables
Participants will enjoy lunch and dialogue with their pre-selected affinity groups.

12:30 – 1:00 Speaker-led Discussion Groups

  • “Intimacy and PD” with David Zimmerman

  • “Planning Ahead: Considerations for Housing, Driving, and Finding Help When Needed” with Amy Carlson 

  • “Integrating Exercise for PWPs” with Karen Nauenberg

  • “Optimizing Medications for PD” with Dr. Peter Lin 

  • “Lifestyle Modifications for Improved PD Symptoms” with Dr. Laurie Mischley 

1:00 – 1:15 Break

1:15 -- 1:45 Amy Carlson, PwP + Davis Phinney Foundation Ambassador
How I Created a Bigger Life
Diagnosed with Parkinson's Disease in 2012 at age 44, Amy has spent the last 6 years learning as much as possible about the disease and how to manage it. Amy will share the lifestyle changes she made that keep her motivated, hopeful and engaged in a meaningful life.

1:45 – 2:00 Karen Nauenberg, MPT
Exercise for Life to Improve FUNction and Mobility in People with Parkinson’s (Part 2)
Karen will lead the audience in a series of seated exercises.

2:00 – 2:45 David Zimmerman, LMFT
Staying Motivated and Finding Inspiration In Hard Times Apathy is a symptom of Parkinson’s that can affect mood, interest in activities, and self-care. Understanding apathy and how to help ourselves and our loved ones with motivation and overcoming obstacles will be the basis of David’s presentation. 

2:45 – 3:00 Wrap–up


Affinity Tables

Would you like to meet, learn, and share with people in a similar stage of PD or with PwPs who share your interests? You might wish to choose to sit at one of these special tables. Make your selections on the Registration Form.

New to PD?

These tables are especially for those recently diagnosed with PD.

Younger than most PWPs?

These tables are geared for young onset PD (People diagnosed before 50.)

Single with PD?

Are you single or otherwise without a “built-in” caregiver? Here is the affinity group for you.

A Veteran with PD?

Tables for meeting other Vets with PD. We think this will be especially valuable for Vets who think their PD might be related to their service.

A Woman with PD?

Women with PD face unique challenges. Here is a chance to discuss them.

Your relative is a PWP?

These tables are for those who have a relative or close friend with PD.

A care giver?

Tables for partners, family, and friends of PwPs. Particularly interesting for caregivers who are new to the role.

Exercise – all types

Where do you enjoy walking in Santa Cruz County? Do you bike? Box? Like to dance? Meet and share with others who enjoy physical activities.

volunteering

Meet others who are active volunteers or are interested but hesitant—share your ideas and learn from others about contributing time to worthy causes in ways that will work for you.

DBS Experiences

These tables are both for people who have had deep brain stimulation (DBS) surgery, and for those considering that option.

tools and Tricks

Do you have a problem needing a solution? Share things (tricks or gadgets) that make your life easier. Do you have experience with (or would like to gain experience with) wearables?

TRAVEL

Do you like to travel? Share destination ideas, recommendations for organized trips, and tips for safe and relaxed travel at this table.


Register Today!

Seating is limited. We expect to reach capacity weeks early. Registration closes on (or before) February 15, 2019. Registration is required 

Donation Request

If you are able, please make a donation to help us cover our expenses. A suggested donation of $10 will cover the cost of a lunch.


 

8:00 AM to 3:00 PM on Saturday, March 2, 2019

Lunch Provided

Monschke Hall at
Twin Lakes Church
2701 Cabrillo College Drive
Aptos, CA 95003

Link to map and directions

 

Questions?

Email us at

info@easepd.org